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Saturday 5 October 2013

THE MOST POWERFUL TED TALK I HAVE SEEN ON MENTAL HEALTH ISSUES - Eleanor Longden: The voices in my head - Watch her describe her "Psychic Civil War" and what she did about it.

Eleanor Longden: The voices in my head



To all appearances, Eleanor Longden was just like every other student, heading to college full of promise and without a care in the world. That was until the voices in her head started talking. Initially innocuous, these internal narrators became increasingly antagonistic and dictatorial, turning her life into a living nightmare. Diagnosed with schizophrenia, hospitalized, drugged, Longden was discarded by a system that didn't know how to help her. Longden tells the moving tale of her years-long journey back to mental health, and makes the case that it was through learning to listen to her voices that she was able to survive.
Eleanor Longden overcame her diagnosis of schizophrenia to earn a master’s in psychology and demonstrate that the voices in her head were “a sane reaction to insane circumstances.” Full bio » 

Despite what traditional medicine may opine, Eleanor Longden isn’t crazy -- and neither are many other people who hear voices in their heads. In fact, the psychic phenomenon is a “creative and ingenious survival strategy” that should be seen “not as an abstract symptom of illness to be endured, but as complex, significant, and meaningful experience to be explored,” the British psychology researcher says.

Longden spent many years in the psychiatric system before earning a BSc and an MSc in psychology, the highest classifications ever granted by the University of Leeds, England. Today she is studying for her PhD, and lectures and writes about recovery-oriented approaches to psychosis, dissociation and complex trauma. 


A few months ago, a colleague of mine brandished an article in front of me with a rather bemused expression. "Read this!" he said, "I'd never have believed it." It was a piece about a man who hears voices. Intrigued, I began to read:

"The voice is identified as Ruah... the Old Testament word for Spirit of God. It speaks in a feminine voice and tends to express statements regarding the Messianic expectation... It has spoken to me sporadically since I was in high school. I expect that if a crisis arises it will say something again. It's very economical... It limits itself to a few very terse, succinct sentences... I have to be very receptive to hear it. It sounds as though it's coming from millions of miles away."
The reason for my colleague's surprise wasn't so much the content (he's a psychologist and is well accustomed to accounts from people who hear things no one else can). Rather, it was who was relating their encounter with this "tutelary spirit" that surprised him. Because this wasn't a report from a distressed, disorientated psychiatric patient; they were the words of award-winning, visionary author Philip K. Dick whose works, amongst others, inspired the movies Blade Runner and Total Recall. To me, this wasn't particularly surprising; why shouldn't someone of accomplishment and renown also happen to be a voice-hearer? But to my colleague it seemed to present a puzzling, almost unsettling, dissonance. And, to an extent, I can empathize with his surprise. After all, voice hearing is closely entwined with schizophrenia (with all the sinister connotations that this controversial diagnosis implies). And in the popular imagination, voices are commonly linked with derangement, madness, and mental corruption. As such, many contemporary voice-hearers inhabit hostile territory -- it's an experience that is literally marinated with fear, suspicion, and mistrust.
Over the years, my voices have changed, multiplied, terrorized, inspired, and encouraged. Today they are an intrinsic, valued part of my identity, but there was also a time when their presence drove me to delirious extremes of misery, desperation, and despair. -- Eleanor Longden
Yet despite these florid associations, psychiatry has long recognized that voice hearing features in a range of non-psychotic mental health difficulties, particularly trauma-based conditions like post-traumatic stress and the dissociative disorders. Perhaps more unexpectedly, research also suggests that approximately 13 percent of people with no record of psychiatric problems may also report voice hearing at some point in their lives. In itself voice hearing is an absorbing topic -- conjuring the nuances of perception and the nature of self -- and has alternatively been feared, reviled, celebrated, and consecrated, and forensically scrutinized within such diverse specialties as psychology, neurology, anthropology, theology, medical humanities, and cultural studies. Furthermore, accounts of voice hearing have been documented throughout human history: recounted by a wide array of pioneers, geniuses, rebels, and innovators that span across the centuries -- and also by normal, unexceptionable people like myself. You see, I'm a voice-hearer too.
It was the delirious, frenzied depths and exhilarating rewards of my own voice hearing voyage that would eventually take me to the Long Beach stage for TED 2013. Over the years, my voices have changed, multiplied, terrorized, inspired, and encouraged. Today they are an intrinsic, valued part of my identity, but there was also a time when their presence drove me to delirious extremes of misery, desperation, and despair. They brought me cringing and rocking to a psychiatric ward and pulled me down into the bleakest depths of madness; yet they would also lift me up to help me pass my University exams and ultimately elevate me to discover fundamental, healing truths about myself. The evolution of this understanding -- and the remarkable privileges and terrible penalties it incurred -- form the basis of my talk and accompanying TED book, Learning From the Voices in My Head.
Sharing my experiences so publicly could have felt overwhelming, but at every step the solidarity of friends and colleagues in the International Hearing Voices Movement fortified and sustained me. This organization has taken huge strides to reclaim voice hearing as a meaningful human experience; one which, for many of us, embodies figurative, emotional metaphors that communicate compelling information about pain and conflicts in our lives. This is not about pathologizing voices as symptoms; rather it is about understanding, accepting, and reclaiming them. In my own pilgrimage to recovery, it was learning to see the voices in more respectful, compassionate ways -- as adaptations, survival strategies, and representations of emotional pain - that made my healing possible. After years of shame, horror, and heartbreak, I finally made peace with my voices which, fundamentally, meant making peace with myself. And it was this framework that empowered me to take to the TED stage; not as an ex-psychiatric patient with a 'bad brain,' but as a proud and maddened survivor with an assortment of valuable and valued voices. In fact, at the end of my talk June Cohen, one of the conference's wonderful co-hosts, came onto the stage and asked me, with a respectful interest, whether I still hear voices. For a split second I hesitated, wondering whether to feign 'normal' and play it down with an airy "oh, not all that much now." Instead I opted for the truth: "All the time," I said cheerfully, "In fact I heard them while I did the talk... they were reminding me what to say!" Pride, empowerment, and the support to listen to one's voices without distress should, I believe, be a natural right of everyone who hears voices. So too, the right to freedom, dignity, respect, and a voice that can be heard.
Ideas are not set in stone. When exposed to thoughtful people, they morph and adapt into their most potent form. TEDWeekends will highlight some of today's most intriguing ideas and allow them to develop in real time through your voice! Tweet #TEDWeekends to share your perspective or email tedweekends@huffingtonpost.com to learn about future weekend's ideas to contribute as a writer.

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