'STORM CLOUDS' of over-diagnosis and over-prescribing of psychotropic drugs for kids gather around the U.S. symbol of liberty - she asks: "IS IT FREEDOM FOR CHILDREN OR CHEMICAL SLAVERY FOR LIFE!" |
DSM 5 Is
Guide Not Bible—Ignore Its Ten Worst Changes
APA approval of DSM-5 is a sad day for psychiatry.
Published on December 2, 2012 by Allen J. Frances, M.D.
in DSM5 in Distress
This is the saddest moment in my 45 year career of studying, practicing, and teaching psychiatry. The Board of Trustees of the American Psychiatric Association has given its final approval to a deeply flawed DSM 5 containing many changes that seem clearly unsafe and scientifically unsound. My best advice to clinicians, to the press, and to the general public - be skeptical and don't follow DSM 5 blindly down a road likely to lead to massive over-diagnosis and harmful over-medication. Just ignore the ten changes that make no sense.
Brief
background. DSM 5 got off to a bad start and was never able to establish sure
footing. Its leaders initially articulated a premature and unrealizable goal-
to produce a paradigm shift in psychiatry. Excessive ambition combined with
disorganized execution led inevitably to many ill conceived and risky
proposals.
These
were vigorously opposed. More than fifty mental health professional
associations petitioned for an outside review of DSM 5 to provide an
independent judgment of its supporting evidence and to evaluate the balance
between its risks and benefits. Professional journals, the press, and the
public also weighed in- expressing widespread astonishment about decisions that
sometimes seemed not only to lack scientific support but also to defy common
sense.
Related Articles
- DSM 5 Will Medicalize Everyday Worries Into Generalized Anxiety Disorder
- The DSM 5 Field Trials, Part 2: Asking The Wrong Question Will Lead To Irrelevant Answers
- DSM-5 Continues To Ignore Critics
- DSM 5 has neither been able to self correct nor willing to heed the advice of outsiders. It has instead created a mostly closed shop- circling the wagons and deaf to the repeated and widespread warnings that it would lead to massive misdiagnosis. Fortunately, some of its most egregiously risky and unsupportable proposals were eventually dropped under great external pressure (most notably 'psychosis risk', mixed anxiety/depression, internet and sex addiction, rape as a mental disorder, 'hebephilia', cumbersome personality ratings, and sharply lowered thresholds for many existing disorders). But APA stubbornly refused to sponsor any independent review and has given final approval to the ten reckless and untested ideas that are summarized below.
The
history of psychiatry is littered with fad diagnoses that in retrospect did far
more harm than good. Yesterday's APA approval makes it likely that DSM 5 will
start a half or dozen or more new fads which will be detrimental to the
misdiagnosed individuals and costly to our society.
The
motives of the people working on DSM 5 have often been questioned. They have
been accused of having a financial conflict of interest because some have
(minimal) drug company ties and also because so many of the DSM 5 changes will
enhance Pharma profits by adding to our already existing societal overdose of
carelessly prescribed psychiatric medicine. But I know the people working on
DSM 5 and know this charge to be both unfair and untrue. Indeed, they have made
some very bad decisions, but they did so with pure hearts and not because they
wanted to help the drug companies. Their's is an intellectual, not financial,
conflict of interest that results from the natural tendency of highly
specialized experts to over value their pet ideas, to want to expand their own
areas of research interest, and to be oblivious to the distortions that occur
in translating DSM 5 to real life clinical practice (particularly in primary
care where 80% of psychiatric drugs
are prescribed).
The
APA's deep dependence on the publishing profits generated by the DSM 5 business
enterprise creates a far less pure motivation.
There is an inherent and influential conflict of interest between the DSM 5
public trust and DSM 5 as a best seller. When its deadlines were consistently
missed due to poor planning and disorganized implementation, APA chose quietly
to cancel the DSM 5 field testing step that was meant to provide it with a
badly needed opportunity for quality control. The current draft has been
approved and is now being rushed prematurely to press with incomplete field
testing for one reason only- so that DSM 5 publishing profits can fill the big
hole in APA's projected budget and return dividends on the exorbitant cost of
25 million dollars that has been charged to DSM 5 preparation.
This
is no way to prepare or to approve a diagnostic system. Psychiatric diagnosis
has become too important in selecting treatments, determining eligibility for
benefits and services, allocating resources, guiding legal judgments, creating
stigma, and influencing personal expectations to be left in the hands of an APA
that has proven itself incapable of producing a safe, sound, and widely
accepted manual.
New
diagnoses in psychiatry are more dangerous than new drugs because they
influence whether or not millions of people are placed on drugs- often by
primary care doctors after brief visits. Before their introduction, new
diagnoses deserve the same level of attention to safety that we devote to new
drugs. APA is not competent to do this.
So,
here is my list of DSM 5's ten most potentially harmful changes. I would
suggest that clinicians not follow these at all (or, at the very least, use
them with extreme caution and attention to their risks); that potential
patients be deeply skeptical, especially if the proposed diagnosis is being
used as a rationale for prescribing medication for you or for your child; and
that payers question whether some of these are suitable for reimbursement. My
goal is to minimize the harm that may otherwise be done by unnecessary
obedience to unwise and arbitrary DSM 5 decisions.
1)
Disruptive Mood Dysregulation Disorder: DSM 5 will turn temper tantrums into a
mental disorder- a puzzling decision based on the work of only one research
group. We have no idea whatever how this untested new diagnosis will play out
in real life practice settings, but my fear
is that it will exacerbate, not relieve, the already excessive and
inappropriate use of medication in young children. During the past two decades,
child psychiatry has already provoked three fads- a tripling of Attention Deficit
Disorder, a more than twenty-times increase in Autistic Disorder, and a
forty-times increase in childhood Bipolar Disorder.
The field should have felt chastened by this sorry track record and should
engage itself now in the crucial task of educating practitioners and the public
about the difficulty of accurately diagnosing children and the risks of over-
medicating them. DSM 5 should not be adding a new disorder likely to result in
a new fad and even more inappropriate medication use in vulnerable children.
2)
Normal grief
will become Major Depressive Disorder, thus medicalizing and trivializing our
expectable and necessary emotional reactions to the loss of a loved one and
substituting pills and superficial medical rituals for the deep consolations of
family, friends, religion,
and the resiliency that comes with time and the acceptance of the limitations
of life.
3)
The everyday forgetting characteristic of old age will now be misdiagnosed as
Minor Neurocognitive Disorder, creating a huge false positive population of
people who are not at special risk for dementia.
Since there is no effective treatment for this 'condition' (or for dementia),
the label provides absolutely no benefit (while creating great anxiety) even
for those at true risk for later developing dementia. It is a dead loss for the
many who will be mislabeled.
4)
DSM 5 will likely trigger a fad of Adult Attention Deficit Disorder leading to
widespread misuse of stimulant drugs for performance enhancement and recreation
and contributing to the already large illegal secondary market in diverted
prescription drugs.
5)
Excessive eating 12 times in 3 months is no longer just a manifestation of
gluttony and the easy availability of really great tasting food. DSM 5 has
instead turned it into a psychiatric illness called Binge Eating
Disorder.
6)
The changes in the DSM 5 definition of Autism
will result in lowered rates- 10% according to estimates by the DSM 5 work
group, perhaps 50% according to outside research groups. This reduction can be
seen as beneficial in the sense that the diagnosis of Autism will be more
accurate and specific- but advocates understandably fear a disruption in needed
school services. Here the DSM 5 problem is not so much a bad decision, but the
misleading promises that it will have no impact on rates of disorder or of
service delivery. School services should be tied more to educational need, less
to a controversial psychiatric diagnosis created for clinical (not educational)
purposes and whose rate is so sensitive to small changes in definition and
assessment.
7)
First time substance abusers will be lumped in definitionally in with hard core
addicts despite their very different treatment needs and prognosis and the
stigma this will cause.
8)
DSM 5 has created a slippery slope by introducing the concept of Behavioral
Addictions that eventually can spread to make a mental disorder of everything
we like to do a lot. Watch out for careless overdiagnosis of internet and sex addiction and the development of lucrative treatment
programs to exploit these new markets.
9)
DSM 5 obscures the already fuzzy boundary been Generalized Anxiety Disorder and the worries of everyday
life. Small changes in definition can create millions of anxious new 'patients'
and expand the already widespread practice of inappropriately prescribing
addicting anti-anxiety medications.
10) DSM 5 has opened the gate even further to the already existing problem of misdiagnosis of PTSD in forensic settings.
DSM
5 has dropped its pretension to being a paradigm shift in psychiatric
diagnosis and instead (in a dramatic 180 degree turn) now makes the equally
misleading claim that it is a conservative document that will have minimal
impact on the rates of psychiatric diagnosis and in the consequent provision of
inappropriate treatment. This is an untenable claim that DSM 5 cannot possibly
support because, for completely unfathomable reasons, it never took the simple
and inexpensive step of actually studying the impact of DSM on rates in real
world settings.
Except
for autism,
all the DSM 5 changes loosen diagnosis and threaten to turn our current
diagnostic inflation into diagnostic hyperinflation. Painful experience with
previous DSM's teaches that if anything in the diagnostic system can be misused
and turned into a fad, it will be. Many millions of people with normal grief,
gluttony, distractibility, worries, reactions to stress,
the temper tantrums of childhood,
the forgetting of old age, and 'behavioral addictions' will soon be mislabeled
as psychiatrically sick and given inappropriate treatment.
People
with real psychiatric problems that can be reliably diagnosed and effectively
treated are already badly shortchanged. DSM 5 will make this worse by diverting
attention and scarce resources away from the really ill and toward people with
the everyday problems of life who will be harmed, not helped, when they are
mislabeled as mentally ill.
Our
patients deserve better, society deserves better, and the mental health
professions deserve better. Caring for the mentally ill is a noble and
effective profession. But we have to know our limits and stay within them.
DSM
5 violates the most sacred (and most frequently ignored) tenet in medicine-
First Do No Harm! That's why this is such a sad moment.
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